The non-profit organization started by the Rosner family, JUSTiN’s LOVE, currently sponsors a part-time music therapist on the 10th floor (Children’s Oncology) at INOVA. “Thankfully we are fully funded through 2024. Our goal for this event is to raise $50,000 in order to ensure the music therapy program is funded through 2025!!!” The Rosner family wrote.
“The purpose of this event is to honor the memory of our son- Justin Alexander Rosner, raise money for the music therapy program at Inova Children’s Hospital, and to HAVE FUN playing golf at our home course- Little Bennett.”
Per the family: “JUSTiN was diagnosed with Stage 3 Embryonal Rhabdomyosarcoma on November 1, 2017 (12 cm tumor found behind his bladder). He was just 15 months old at the time of diagnosis. He immediately began a 43-week treatment plan at INOVA Children’s Hospital, which included several cycles of chemo and 28 rounds of proton therapy radiation in Baltimore. He handled treatment like a true warrior and had an overall great response. It came as a complete shock to us all (doctors included) when he relapsed right at the end of treatment in September 2018.
Despite the pain and through the tears, JUSTiN always found a way to smile. His will to live was extraordinary- he was referred to as “superhuman” by the medical team, as no one had witnessed a child his size on such high levels of pain meds. JUSTiN’s battle ended on February 5, 2019. He was 2 1/2 years old. His tumor was donated with the hope of bringing us closer to ending the nightmare of childhood cancer.
To know Justin was to love him. He gave his time and heart to anyone who cared to spend a few minutes with him. He found joy in ALL things. He knew how to live and love. He connected deeply with music. He adored his big sister Kacey. And he NEVER, EVER let cancer steal his spirit. Justin (our J bug) was and will always be our BRAVE LITTLE SOUL.”
Additional information about the tournament, including participation and sponsorship opportunities can be found here.