Brooke Eby, a Potomac native and Churchill High School graduate who became a nationally recognized advocate for people living with amyotrophic lateral sclerosis (ALS), died on October 1 at the age of 37.
Eby was diagnosed with ALS in 2022 at age 33 after experiencing symptoms for several years. Following her diagnosis, she began publicly documenting her experience with the terminal motor neuron disease, building a large social media following under the handle “limpbroozkit.”
Known for approaching difficult aspects of living with ALS with candor and humor, Eby amassed more than 500,000 followers across social media platforms. Her posts offered an unfiltered look at the progression of the disease while raising awareness about ALS and the experiences of people living with it.
Her advocacy extended beyond social media. Eby founded ALStogether, an online peer community created to connect people living with ALS and their caregivers. The Slack-based community provided a space for members to exchange information, ask questions, discuss challenges and connect with others facing similar experiences.
In 2026, Eby and the ALS Network began integrating ALStogether into the organization in an effort to expand its resources, reach and long-term impact.
The ALS Network announced Eby’s passing and remembered her as an “extraordinary advocate, storyteller, community builder, and friend whose honesty, humor and determination changed how countless people understood ALS.”
“Brooke changed the way people see ALS, but she also changed the way people living with ALS find and support one another,” said Sheri Strahl, president and CEO of the ALS Network. “She brought humor into incredibly difficult moments, spoke with fearless honesty, and created connection where it was desperately needed.”
In June, the ALS Network honored Eby with its Dean and Kathleen Rasmussen Advocate of the Year Award for her leadership and impact. In accepting the recognition, Eby said she had not chosen ALS but had chosen to “get loud” about the disease and use her own irreverent approach to advocacy.
The organization said Eby helped people better understand ALS, helped families affected by the disease feel seen and created a community that will continue beyond her lifetime.
“Brooke once promised she wasn’t getting quiet,” the ALS Network wrote in its remembrance. “She hasn’t. Her voice lives on in the people she inspired, the community she created, and the movement she helped shape.”
