The HealthWell Foundation®, an independent non-profit that provides a financial lifeline for inadequately insured Americans that’s based in Germantown, has enhanced its homocystinuria fund to also provide financial assistance to patients living with organic acidemia. Through the Homocystinuria and Organic Acidemias Fund, HealthWell will provide up to $5,000 in copayment or premium assistance to eligible patients with annual household incomes up to 500 percent of the federal poverty level to obtain prescription medications for the treatment and management of their condition.
Per the press release: Kathy Stagni, Executive Director, Organic Acidemia Association, said, “OAA is honored to provide a financial contribution to support broadening this fund to include organic acidemias. Those living with the condition can be faced with a multitude of symptoms including breathing difficulties, vomiting, slow growth, and lethargy. Organic acidemia may also lead to neurological and physiological harm resulting in toxicity to organs. If undiagnosed and left untreated, the condition can be fatal. Accessing proper care and the ability to afford continued treatment are obstacles that many patients face. We applaud the HealthWell Foundation for recognizing this unmet need and for providing the financial resources these patients need to access lifesaving treatments.”